That feeling when you're in bed, and over the course of two or so hours you feel your muscle strength totally leave your legs and your hands, and your fingers…so you do your usual tests, the ones you've developed over the past 8 months…and you realize you've lost your ability to snap your fingers,…
So quick medical update: I’m in a flareup again (like, not quite acute…but reaaaaaaaly close…like if acute is a 10, I’m at a 9.7). Walking is exceedingly difficult, muscle/pain weakness are making me ambulate like a toddler (but I have Zappy the Wonder Walker, for which I’m extraordinarily grateful). My PCP & Neurologist…
Just finished up at the Neurologiats office. They don’t think this is just Fibromyalgia for a lot of reasons. Chief among them are that many of my symptoms are far beyond the scope of Fibromyalgia. Also, whenever I’m in a flare up/excessive pain, my CK levels are elevated indicating some kind of muscle issue…
So I did 10 minutes at 3.2/mph, at a 9 incline at Planet Fitness this morning: now to see if the flareups are regular and repeatable…if I’m miserable tomorrow we’ve actually made progress because we learned something. If I’m not miserable we’ve also made progress #ForScience
Okay, Mayo Clinic messaged me back to let me know that they’ll let me know about my appointment after July 10th (when the doctor I need to see is back in town and can make a determination about whether or not to offer me an appointment). I’ll keep everyone updated! In the meantime I…