Neurology

For those new: Hi! I’m queer & disabled. Beyond LD & Dyslexia, I have ADHD/TS/OCD/Depression/Anxiety, and Rheumatoid Arthritis & Myositis. I am a very much a member of the Disabled community. When I speak it is only of, and from my own experiences. YMMV.

For those new: Hi! I’m queer & disabled. Beyond LD & Dyslexia, I have ADHD/TS/OCD/Depression/Anxiety, and Rheumatoid Arthritis & Myositis. I am a very much a member of the Disabled community. When I speak it is only of, and from my own experiences. YMMV.

For those new: Hi! I’m queer & disabled. Beyond LD & Dyslexia, I have ADHD/TS/OCD/Depression/Anxiety, and Rheumatoid Arthritis & Myositis. I am a very much a member of the Disabled community. When I speak it is only of, and from my own experiences. YMMV. — Matthew L. Schwartz, DSW, LCSW, MBA, CFSW (@DrMattDSW) May…

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Fuck Fuckity Fuck Fuck Fuck

Fuck Fuckity Fuck Fuck Fuck

That feeling when you're in bed, and over the course of two or so hours you feel your muscle strength totally leave your legs and your hands, and your fingers…so you do your usual tests, the ones you've developed over the past 8 months…and you realize you've lost your ability to snap your fingers,…

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Neurological/Rheumatological Fuckery

Neurological/Rheumatological Fuckery

So quick medical update: I’m in a flareup again (like, not quite acute…but reaaaaaaaly close…like if acute is a 10, I’m at a 9.7). Walking is exceedingly difficult, muscle/pain weakness are making me ambulate like a toddler (but I have Zappy the Wonder Walker, for which I’m extraordinarily grateful).   My PCP & Neurologist…

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(Not Quite) Back to Square One

(Not Quite) Back to Square One

Just finished up at the Neurologiats office. They don’t think this is just Fibromyalgia for a lot of reasons. Chief among them are that many of my symptoms are far beyond the scope of Fibromyalgia. Also, whenever I’m in a flare up/excessive pain, my CK levels are elevated indicating some kind of muscle issue…

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For Science!

For Science!

So I did 10 minutes at 3.2/mph, at a 9 incline at Planet Fitness this morning: now to see if the flareups are regular and repeatable…if I’m miserable tomorrow we’ve actually made progress because we learned something. If I’m not miserable we’ve also made progress #ForScience

Messaged Back From The Mayo

Messaged Back From The Mayo

Okay, Mayo Clinic messaged me back to let me know that they’ll let me know about my appointment after July 10th (when the doctor I need to see is back in town and can make a determination about whether or not to offer me an appointment). I’ll keep everyone updated! In the meantime I…

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“So while you’re back at the Mayo Clinic…”

“So while you’re back at the Mayo Clinic…”

Just finished up at the doctor; while we’re going over everything he was like “The problem with Rheumatology is that it’s not like Doabetes where we can just look at your A1C…so while you’re back at the Mayo Clinic in August please see if they’ll take investigate the possibility of Inclusion Body Myositis…” Okay…

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So it’s not so much that I don’t have superpowers anymore….

So it’s not so much that I don’t have superpowers anymore….

…it’s just that those superpowers are morphing, and changing into something different, something slower, perhaps something more empathic, and narrowly defined. Having gone from sleeping 3 hours (maybe) a night and infinite energy…to Fibromyalgia, and no energy, and pain, and trouble ambulating, and needing to sleep all the time, and feeling fatigued all the…

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Anime North 2017 Wrap Up

Anime North 2017 Wrap Up

  Before the wrap up first a little reflection: I am amazed, every year, about how much Anime North & Yaoi North continues to mean to me – it’s honestly the most amazing three days (well, four, when I can get up on the Thursday night beforehand for pre-con shenanigans) where it is totally acceptable to let…

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